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Introduce Yourself!

Welcome to the CanTeen Connect Parent Forums. Tell us about yourself. :)

Remission and fear of reoccurrence

My son has been in remission for 9 months (Hodgkin Lymphoma), on surveillance and is doing well - he still feels anxious every time he has his bloods done, fearful of a reoccurrence. I worry about late effects and secondaries. Does the worry subside...

Cancer's lost generation

A lot of the work our Research team do is based on better understanding what it’s like to be a young person with cancer, including the sometimes elusive idea of friendship and connection. How do we measure that? What value do we get from it? And how do...

Moving through it

My wife died at home, some 27 months ago. Although on the surface we're "amazing" (my 2 daughters 20, 16 and I), on reality we're all sad, lonely and (dare I say it) depressed... and it still sucks. It doesn't really get any easier, you just...

Easter Long Weekend Closure

The Connect Team will be taking a break over the Easter long weekend from Friday 2nd April, we will return on Tuesday 6th April 2021 from 10am. If you need immediate emergency assistance contact emergency services on 000 in Australia or 111 in New you...

when easter feels tough to get through: let's talk about that

Hi amazing Parent Connect community,

So... the Easter long weekend is coming up. For some people here, that might have a particular meaning for you or your family, due to your faith or traditions;

for others it's linked to holidays, and being with and...

A young person with cancer interviewed their mum about her experience

Hi everyone,

Hope you're all taking care no matter where you are 💚

Adam is a Canteener who has been sharing his cancer journey on YouTube and Canteen Connect for Young People.

"Really concerned. Just, you're in autopilot basically. We were just on to...

An Open Letter to Parents Who Have Lost a Child

I'm a mum who has lost a child to cancer. I have found that writing down my thoughts/feelings has helped me immensely and I came across this article that 'spoke' to me - it's written by a mum about the death of her son - she truly understands how we...

Covid is not the only germ I’m fighting

When my husband was diagnosed with stage 4 bowel cancer 6 months ago, I went into germ lock down. Cleaning the house, asking all family to update vaccinations, “you want to visit? You will wash your hands!!” Then I thought it was pretty good of the whole...

Getting on with things after AML/BMT currently in remission

I find it difficult some days just get on with things I worried about every bit of pain and whether the AML is back or not

Family Dynamics & Cancer

Here is a great podcast about how cancer can affect family dynamics.

"We often don’t think about the impact that a diagnosis has on a family but it’s actually crucial in those early days for families to begin to look at how they can change the way they...

Dumb arse things people say

Upfront I'd like to acknowledge that I'm sure people just want to connect and I'm positive that the majority of people are coming from a place of love and support, and they don't want to hurt with the things they say. Nonetheless I've been hit with some...

When the path shortens and the journey is close to its end

Palliative Care and preparing for good bye

Coming Out the Other Side

When Its All Said and Done

Living with Total Colectomy and/or Bladder Removal

Hi everybody!

We have a special request from one of the families we are supporting:

Has anyone had experience (either yourself or your family member) with a total colectomy and/or bladder removal?

If so, would you please reach out to us if you mind us...

The songs that sustain us... (a thread for music!)

Hi everyone!

In my conversations with parents, carers, and young people, I often hear stories about the songs and music that sustain people through tough times.

In the midst of the appointments, the information, the grief, and the tasks of getting to...

Long term mental health issues

Do thers have an adult child (23) who is having mental health issues related to their childhood cancer journey

We'd love to hear from you

Hi everyone! ☺️ My name is Fran. I recently joined Canteen as the Online Community Coordinator. I'm responsible for helping you get the most out of Canteen Connect.

Since I'm new, I'd really love to hear from you.

What do you want to see more of? you...

Moving Forward WITH Grief

Hi All, My name is Nogol. I am one of the Canteen Psychosocial Support Workers in South Australia. I came across this TEDtalk, in which Nora McInerny beautifully shares her experience with grief following her husband's death from brain cancer.

Grief to...

How can I support my child

My son has rhabdomyosarcoma and it's stage 4.